Have questions or want to get involved? We'd love to hear from you.
For urgent matters or to speak directly with us:
ASOCIATIA TAS
Str. Stadionului nr.15, bl.19, ap.49, Sfântu Gheorghe
Covasna, Romania
Your donation directly supports Tas's gene therapy treatment, ongoing therapy sessions, specialized equipment, and home modifications. The primary goal is to raise $3.5 million for the Elevedys gene therapy treatment. A detailed breakdown of fund allocation is available upon request.
We welcome volunteers for various activities, including fundraising events, awareness campaigns, and administrative support. Please contact us by e-mail, specifying your interest in volunteering, and our volunteer coordinator will reach out to you with opportunities that match your skills and availability.
Yes, you can designate your donation for specific aspects of Tas's care, such as therapy sessions, medical equipment, or the gene therapy treatment. Please include a note with your donation or contact us directly to specify your preference.
You can stay updated by checking the Updates page on our website. We will create a newsletter, and social media accounts in the future. We post regular updates about Tas's treatment progress, upcoming events, and fundraising milestones.
Absolutely! Personal messages of support mean a great deal to Tas and his family. You can send messages through our contact form, email, or physical mail. We collect these messages and share them with Tas and his family regularly.
Elevedys is a gene therapy product developed for Duchenne muscular dystrophy. It was approved in June 2024 for ambulatory, genetically confirmed patients aged four years and older suffering from DMD. It is an infusion product that prompts the body to produce microdystrophin, which can stop the destruction of muscle cells and significantly improve quality of life.
The $3.5 million cost reflects the extensive research, development, and manufacturing processes required for this cutting-edge treatment. Gene therapies are among the most complex and advanced medical treatments available, and their pricing reflects the significant investment required to bring them to market. Despite the high cost, the potential benefits for Tas's quality of life make this a worthwhile goal for our fundraising efforts.
Together, we can make a difference in Tas's life and his fight against Duchenne Muscular Dystrophy.